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State of Caring Survey 2020

The State of Caring Survey is the UK’s most comprehensive research into the lives and experience of carers. The 2020 survey is now closed.

Thank you very much to each and every person who took the time to complete the survey and give us a full picture of their caring experience.

Due to the ongoing coronavirus (COVID-19) crisis, we will not be publishing a research report in summer 2020. However, we will still be using the evidence from this year’s survey throughout our work to ensure that carers’ voices are heard.

The next State of Caring report will be in 2021.

What we are doing with your evidence

  • Campaigning for increased rights and entitlements for carers by sharing select findings with MPs, Government and local decision makers.

  • Understanding your experiences to argue for better rights such as a right to Carer’s Leave in the workplace.

  • Providing evidence to help improve carers’ experience of services and support to make life easier.

  • Making a strong case for increasing financial support, such as Carer’s Allowance.

  • Highlighting the difficulties carers were facing before the pandemic as part of our response to the coronavirus (COVID-19) crisis.

  • Investigating the types of activity carers would like to take in, as well as the barriers faced in doing so, as part of our ongoing work with Sport England.

  • Working with GPs to support carers access to flu jabs during the winter vaccination programme.

  • Giving carers who said they are interested in sharing their story the opportunity to do so.

State of Caring 2019 - key findings:

In 2019, 8,000 current and former carers shared their experiences and helped inform our State of Caring 2019 report. Read more in the full report here:

Caring costs: Almost 2 in 5 carers (39%) responding to our survey said they are ‘struggling to make ends meet’. Over two thirds of carers (68%) reported regularly using their own income or savings to pay for care or support services, equipment or products for the person they care for.

Cuts to support: 1 in 8 (12%) of carers reported that they or those they support received less care or support services during the previous year due to a reduction in the amount of support from social services.

Carers put themselves last: 53% of carers said that they are not able to save for their retirement, and almost two thirds of carers (64%) say that they have focussed on the care needs of the person they care for, and not on their own needs.

Get in touch:

If you have any questions about the research, please contact our policy team by emailing This email address is being protected from spambots. You need JavaScript enabled to view it.

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